September 3, 2009

Quality of Life of D/HOH Children Study

This email has been forwarded to me several times today from other parents of children with a hearing loss. I checked it out and decided to submit our information for consideration. To learn more and/or volunteer to participate, go to

Project HQL
University of Washington
Box 359455
Seattle, WA 98195

Dear EAA Member,
On behalf of the University of Washington and the University of Colorado at Boulder, I´d like to invite you and your clinic or organization to spread the word to eligible families about our study, Quality of Life of Children and Youth who are Deaf or Hard-of-Hearing (Project HQL). We´re eager to find out how parents of children ages 5-10 and youth 11-18, who are deaf or hard-of-hearing, view their quality of life. The goal of our study is to create a quality of life questionnaire specific to these groups, which will inform service providers, advocates, and clinicians about the unique needs of this important group of children and youth. We´re currently recruiting parents of children 5-10 and youth who are 11-18 from across the country to validate our newly developed survey. As audiologists are instrumental service providers for children and youth who are deaf or hard-of-hearing, we need your help so the opinions of these children and youth are heard. We´re seeking participants with all degrees of hearing loss, educational placements and communication modes. While we continue general recruitment, we find that audiologists are vital for the recruitment of children and youth with mild hearing losses and cochlear implant users, making the cooperation of the audiology community crucial to our study´s success. I have provided a sample of the flyer for your reference. If you would like additional copies or information please contact us via email, phone, or visit our website to complete a request of information form:
Project HQL

We believe this study will provide important information to members of the deaf and hard-of-hearing community, professionals working within that community and our funding agency, the National Institute on Deafness and Other Communication Disorders at the National Institutes of Health. On behalf of the University of Washington and the University of Colorado at Boulder, I wish to express my deepest appreciation for your time and support.
Sincerely yours,
Melissa A. Garafalo, Au.D., CCC-A
Research Assistant
Quality of Life of Children and Youth who are Deaf and Hard of Hearing Project

1 comment:

  1. Kerry,

    Thank you so much for posting out study information on your blog. We greatly appreciate it! I do hope you and all the families who read your blog will contact us about participation.

    We've had a great turn out so far from the deaf community members who use sign language to communicate and we want to be sure that the auditory-verbal deaf community is well represented in our study, too! Hope to hear from you all soon!

    Nancy Hanauer
    Project HQL Study Recruiter
    University of Washinton